Newsletters
Scan Our Newsletter Archive for DCM Topics of Interest
DCM Beat
Newsletters of the DCM Research Project
Newsletters are mailed directly to all participants. If you wish to be added to our mailing list, please contact us.
December 2016
TOPICS: DCM Research Study Announces Major Expansion
April 2014
TOPICS: Genetic Counseling for DCM; Staff Updates
August 2013
TOPICS: Titin Genetic Testing; New Study Name; Staff Updates
March 2013
TOPICS: The FDC Research Project Has Moved to The Ohio State University; Staff Updates
March 2012
TOPICS: How Does Participation in the FDC Study Work?
July 2010
TOPICS: Gene Discovery Projects in the FDC Project; Staff Updates
March 2010
TOPICS: Different Types of Cardiomyopathy in One Family; Collecting Heart Tissue Samples
December 2009
TOPICS: FDC Research Genetic Testing vs. Clinical Genetic Testing; Dilated Cardiomyopathy During Pregnancy
July 2009
TOPICS: New Medical Guidelines Published for Genetic Cardiomyopathy; Requesting Your Support for Our Work
March 2009
TOPICS: Expanding Our Family Study To Include Non-Familial IDC; A Genetic Model for Familial and Sporadic IDC; Cardiac Screening for FDC Project Participants
November 2008
TOPICS: The Genetic Information Nondiscrimination Act (GINA): Federal Law Adds New Protections Against Discrimination; New Research Papers by the FDC Project Group; New Personnel Introduction
July 2008
TOPICS: The FDC Project Has Discovered a Genetic Change in My Family. What Now?
March 2008
TOPICS: The FDC Research Team Prepares for Screening Trips; Personnel Introductions
September 2007
TOPICS: The FDC Research Moves to the University of Miami
December 2006
TOPICS: The Familial Dilated Cardiomyopathy Project 2006
May/June 2006
TOPICS: FDC Research Participation vs. Clinical Genetic Testing
December 2005
TOPICS: The Familial Dilated Cardiomyopathy Project 2005
August 2004
TOPICS: Finding the Gene in an FDC Family
March 2004
TOPICS: Causes of Dilated Cardiomyopathy
September 2003
TOPICS: Genetics of FDC (review of genetics concepts, inheritance patterns, and FDC genes).
February 2003
TOPICS: Overview of cardiovascular diagnostic tests (EKG's, echocardiograms, cardiac catheterization); peripartum cardiomyopathy.
August 2002
TOPICS: Review of FDC Project methods (gene identification and characterization of FDC); new personnel introductions; genetics 101; renewed NIH grant funding.
February 2002
TOPICS: Review of types of cardiomyopathy; FDC question & answer; new personnel introduction.
November 2001
TOPICS: Review of genetic test results regulations; recent OHSU research presentations.
January 2001
TOPICS: Creating your family medical history : how-to and resources.
October 2000
TOPICS: The Human Genome Project and impact on FDC research; grant funding for rescreening families; personnel introduction.
June 2000
TOPICS: Follow-up for normal and abnormal screening results; new FDC gene (lamin); overview of echocardiogram and EKG tests; overview of grant funding for FDC project.
January 2000
TOPICS: Introduction of newsletter; background on FDC project from Dr. Hershberger; road trip update; review of blood tests performed on participants; what is DNA?; personnel introductions.